Take up thy bed and walk!

I am long overdue for an update and I apologize for that. This blog was a tool to help me stay motivated, to learn by researching and then transmitting the information to you and to provide a one-year day by day record of my healing journey with MS on the Wahls Protocol. Well, I have lots of good news, much has happened and everything continues to improve! I’ll break it all down:

Balance and Mobility

  • I can now walk down a flight of stairs without the use of a railing, unheard of before and I can do my physio exercises targeting specifically my drop foot left leg without holding onto anything. This includes many one leg exercises.
  • I can exercise for an hour in a shallow pool water class. I couldn’t do that because the pounding contact with the pool floor would fatigue my left leg in ten minutes. I usually attend deep water classes for partly that reason. The other reason is that I prefer deep water. I took the shallow class this morning and passed with flying colors, the whole hour, then waded out of the pool without any fatigue at all.

Spasticity

  • Night time, horrific leg cramps are now a faint, distant memory.
  • First rise and walk from bed spasticity is mostly gone, one stretch of my left leg and it is no more. Some mornings, I don’t even need to do that.

Mid to Lower Back Damage

  • Rarely do I have electric buzzing in my mid back. My most recent lesions are there from just before the beginning of my Wahls trek one and half years ago.
  • When walking or standing for a length of time, both my left leg and my back fatigue forcing me to sit and rest for at least 30 minutes. This has greatly diminished.

Cognitive

  • I made the decision to stop driving in 2010 by simply not renewing my drivers license that year. I drove 25 years, but I knew if I kept driving with my problems with multitasking and limited ability to take in all the information needed to make accurate decisions when driving, I was going to have a bad accident. Rather than risk being tempted to drive, I made the agonizing decision to fore go my license. Well! I am more than confident to drive now. My wits are sharp again. I have my learners a month now and am practicing with a friend. Next month I’ll take the test for my full license. I do still have multitasking problems, but to give this a percentage, I am 80% better. It is something to be mindful of, but no longer is it detrimental.
  • Depth perception is no longer an issue at all and hasn’t been for a long time. Another distant memory.
  • Speaking of memory, I have improved leaps and bounds. This was absolutely crippling for me. My short term is, I guess I’d have to say 80% better as well.

Employment

  • My dream is to be 100% independent. I am working slowly in that direction. I am on disability for years now, I live alone and do not have financially set supporters or a second paycheck to rely on. I’ve had the worse happen to me twice over illness and I know first hand how bad that can be. I don’t kid myself and know that I’m still quite vulnerable. So, jumping the gun is something I must be careful about. I am working a part time job just for December in four-hour shifts at a posh gallery. Three shifts per week. A perfect first test of my stamina.
  • Volunteer work is the first thing I went back too. I am a member of a non-profit that I’ve been an acting member of over 25 years. I lost a District leadership position over illness in 2009 and have not taken a position like that since. Well, I took back that position three months ago and so far, so good. This has included two weekend travel trips without any problems with fatigue, again, unheard of. Usually, I get slammed after the fact and end up bedridden for several days. No more!

Mobility and Access around the City

  • Calgary is enormous. It is 250 square miles. It does have an excellent transit system for most parts of the city. However, it is usual if going to many parts of the city, which would take a car 20 minutes, is necessary for a combination of a bus, train and bus trip taking an hour to get to your destination. Some trips have different walking requirements depending on where you’re going. Thankfully, Calgary has something called Access Calgary that provides door to door service for limited mobility individuals. I have that. I have cut down on using Access to the most complicated trips, such as those above. My gym is one of those. To work out, then carry a gym bag of wet clothes and it is a bus, train and a bus trip. However, Access drivers often don’t realize its me waiting for a ride, because I look less and less visually disabled as time marches on on the Wahls Protocol. I believe that eventually my need for Access Calgary will be in the past. But, for now, I am being very prudent. I can have nothing stop me from getting to the gym, an integral part of my well being. But, I am getting there a day at a time.

Fatigue

  • Reduction of this has been touched on in several area’s above. Here I’ll talk about where fatigue is still an issue. When I take on too much too fast, happened twice, I will end up confined to my couch for several days. What brings this on the most is forcing myself to adjust to too many new routines at once, which is why it is imperative for me to take on new responsibilities slowly. Incorporating each gently. I do still have MS and I am not completely healed or cured, but I sure have come a long way……baby!

Skin, hair and nails

  • Oh this just gets better and better. All are strong, vibrant and healthy. I have made the decision to stop dying my hair and let my grey freak flag fly. I have had tons of compliments on my hair since I decided to go in that direction. From Cruella Deville to Fashionista comments, LOL, cracks me up. I have never been a Fashionista.
  • This is a very arid location and nails suffer terrible for it. We have a nail place on every corner. I have never had a problem growing my nails and keeping them strong on my own in New England, but not here. They peel, become brittle, and literally crumble. I am happy to say that they are strong and healthy again.
  • My skin continues to improve. Anyone seriously on this regime will experience the phenomenon of age reversal for the first few years. And I am definitely a testament to that. I get comments constantly about it.

Stomach Microbiome

  • My stomach has healed. A most important factor with this diet is that it will heal your gut. We have a delicate balance of good bacteria vs bad bacteria that unhealthy carbs and sugar throw out of wack. And, I really do believe that there is a connection between the gut, the heart and the brain, when the gut is off, so is everything else. It makes perfect sense and here am I experiencing the benefit of a balanced Microbiome. You better believe there is a huge difference in your overall well being.
  • When I began, my weight was 198 in a size 1X to a 2X. I am 5′ 4″ with a solid bone structure. I am now 152 in a loose size 12. I haven’t weighed this little since 1994. I would like to lose another 20 lbs, but I am not obsessing over that, I am feeling and looking fit.

Meditation and Stress Reducing Activities

  • This is an area where I was ahead of the game. I live a lifestyle that promotes these objectives and continue to do so. One thing I began unique to the Wahls Protocol and still do is Smudge with sage every morning and every night. Smudging is burning dried sage leaves, drawing the smoke over you as you clear your mind of all negativity. I say to myself, “I am healed.” Then, I smudge my “Abundance” rock and only allow abundant thoughts in. Important is that I take both these realities and practice them all day, which I do. If I start thinking disabled thoughts, I repeat, “I am healed.” or “I’m so poor thoughts”, I repeat, “Abundance is my reality and my future.” It works to keep one’s heart truly grateful, which is the best stress reliever there is. No poor me’s for this gal.

Working the Wahls Protocol so far

Pro

  • All the above. Everything has become second nature for me, that took the better part of a year to get that way. I prefer eating like this. Really, what I eat is what one may expect in a five star restaurant. Organic, clean and fresh!
  • I make my own Kombucha tea and bone broth. Both outrageously expensive to buy, but inexpensive to make, especially the tea.
  • I take 8,000 IUs Vitamin D, Vitamin C, B12, B Complex, and Llysine daily.
  • I continue to eat 2 to 3 cups veggies daily as specified by the Protocol.
  • I eat a fermented serving daily.

Con

  • The Wahls Protocol is expensive to follow, its my health, so obviously, where’s my choice. But, its expensive because the foods and especially the supplements are expensive. My supplement list above is a fraction of what is recommended, but its all I can afford on disability by myself. I’ll be honest, I get a little jealous listening to some who talk of designer supplements, all natural products, functional doctors, allergy screenings, etc that I can in no way afford in my current situation. But, hey, the future sure does look bright for me just the same. Maybe, my financial situation will eventually improve as well.
  • I cannot stand seaweed nor eating organ meat, both are very important health promoting foods. But, I just can’t do it and I tried. What did work for me was Desiccated Liver pills and Spiralina capsules, but again, between the two, $70 a month. Can’t afford it. So, I’ve let that go and stopped beating myself up over it. For now and I say “for now”, because I really do believe that I have an abundant future ahead of me.

Lastly, Colds and Flu’s

  • I was diagnosed in 2004 with MS. Since that time till I began the Wahls Protocol in March of 2017 I experienced only 3 colds or flu’s in all that time. I asked my Neurologist why this was. He explained that he hears this often from his patients and believes that its because our immune systems are all hopped up because of MS, an autoimmune illness, literally my own anti bodies attacking my body as if it were a disease. Well, here’s the change, I just got over my third cold/flu since I began the Wahls a year and a half ago. Three! That tells me that my immune system is normal at present. I am getting one to two colds and flu’s per year like most other people and like I did before MS. Yes, having the flu really does bite, but I’ll take the cold or flu over MS any day!

That’s all that I have for now. I’ll try not to let this go so long the next time.

 

Bon Sante

 

 

 

It is a matter of thought…

I gave away my walker last week. A woman in my lobby was waiting with a walker unable to get into her cab because her heavy duty, older walker didn’t fold up. I thought of my aerodynamic fold up walker that I haven’t needed to use in six months. I gave her the walker, she was thrilled to have it and I was thrilled to not need it. A friend said, “What if you need it again?” I said, “A. I’m not going to need it again and B. If that’s not the case then I’ll buy one.” Its like giving away clothes that are too big for me. I want to keep them in case I put the weight back on. That thought is self defeating. I live my life in the day and keep a vision for tomorrow well stoked. My vision for tomorrow is abundance, health and physical fitness. My responsibility is training my thoughts and body for that future today.

I am a sober alcoholic. It would be the same as keeping bottles of my favorite alcohol lying around, in case I drink again. Sobriety has been the act of thinking sober. Losing weight has been the act of thinking thin and fit. Getting well has been the act of thinking spry, active, clear minded and to stay focused on that. I had to tackle the disabled mentality and identity that one becomes accustomed to when reduced by an illness as devastating as MS. I’m preparing to work again. The MS Social Worker said as she motioned two fingers slowly pinching closed to a one inch gap, “Baby steps.”, she cautioned, “Try volunteering fifteen hours a week first.” My instant retort, “I already volunteer fifteen hours a week.” That is the perfect example of a closed mind. First of all, the volunteering I do is sporadic, not in eight hour shifts. That’s what I need to do.

After allowing the idea to sink into my head (took a week), I contacted a friend who is involved with a non profit that had asked me a few years ago to get involved. I declined then, because I was way too sick to commit. However, that isn’t the case now and is a prudent way to test the working waters and see how I do over the course of several months. That is wise. If I leave it up to my head, Miss, “I want to jump into a forty hour a week job after over a decade of not working first!”, mentality can and will set me back leagues. Slow and steady wins the long haul race. I’ve asked professionals for help so that I do this prudently and don’t set myself back. Asking for help is part one, part two is taking direction. We see advisers as a weakness, but it is actually a sign of strength. Most powerful and successful members of society have advisers. For a complete picture the balance is to research your advisers (make sure they have the expertise you need), weigh the information they offer and look up your own information. In other words, don’t follow blindly, do your due diligence and don’t close your mind to other’s valuable experience. Its a balance. I see the Social Worker a second time and have my first appointment with the Occupational Therapist this coming Wednesday. Woody Allen said that, “Eighty percent of success is showing up.” I have learned that this is absolutely true and that the rest is following up with what is offered. I am on a fact finding mission to understand what I can do and what I can’t. This way, I am protecting myself, making myself as useful as possible and not wasting anyone’s time.

I have a clear vision that is growing and expanding. I see myself successful in my work, my personal life and will be financially set. My responsibility is to do whatever I need to do to realize this. That is to stay positive, change my thinking to that of an able bodied person, to think abundantly, to get to the gym, eat the foods needed for health, and continually cut out toxic products and toxic people from my life…..

…….One day at a time.

 

Bonne Sante

All or Nothing? I Pick All.

When I tackle something, I have learned through the years of my life to bring all of myself or nothing. I am an open book. Following the Wahls Protocol and how I am defeating MS is no different. My goals for this blog have been:

  • To help keep myself motivated and accountable
  • To provide a detailed record of one person’s healing
  • To inspire others
  • To give a truthful account, good and bad
  • To share helpful information and shortcuts that I have learned
  • To give a realistic account that does show how hard, yet how doubly rewarding this has been and is
  • To prove that its all worth it

At this time, as I have written in the past few blogs, I am rehabilitating in preparation for the workforce. I will have a job that fully utilizes all that I have to offer. Too be successful, I have had to look at some tough to swallow truths about myself. I have written about these as I deal with them. Is it wise to publicly speak of a crippling past fear of success, of horrible wreckage at the hands of MS, of darker issues that I have worked very hard to successfully overcome, thereby preparing me for a one hundred percent commitment to the Wahls Protocol?

Fear….what if a future employer reads about these issues and discriminates and I lose the opportunity for this job or that? Here’s my answer to that…..I bring all of myself or nothing. That includes any future job on my horizon. My learned skills, my experiences, and my wisdom comes with me. I once lived in a self constructed prison, terrified that the world would know where I’ve been and what I’ve done and that secretly, deep down inside, I knew you knew that I was worthless. It has taken me a long time to overcome that. Today, I have so much to give, so much I want to learn, and so much to share. Because of the Wahls Protocol, my body is finally catching up to my ambition and drive to help others. My mind is out of the fog, awake and hungry to learn more.

I had a friend in the early 90’s who had Progressive MS. She was diagnosed when she was 18. She managed to complete her degree in education, but was never able to realize her potential in her chosen career. By 26, just as I met her, she lost her right to drive, her husband left her for someone else and she then had to let go of her position as the primary caregiver for their three year old son. She was athletic, she went to the gym five days a week. A tiny, muscular thing. She strained as she forced her spastic legs to walk, her hands shook uncontrollably and the day she messed herself, but then calmly gave us direction to help her, all of us embarrassed for her, whilst she stayed calmer then us all. I think often of her courage and dignity in the face of all that ugliness.

That year a new drug, the first ever, was introduced. Copaxone. I watched her face light up with a renewed hope, only to see it fall just a few days later when she was told that the drug could do nothing for her as she was Progressive. Well Joanne, I just want to say to you, I have relapsing remitting MS and I have been on Copaxone for ten years. I started the drug when I had 20 lesions and now I have double that. I too lost my ability to drive, lost my ability to work, had incontinent bowels and had to give up primary care of my children. So, my dear friend, you missed nothing. She died a few years later, bedridden. When I was diagnosed with MS in 2004, I immediately thought of Joanne. Terrified, having watched what it did to her. If she had been given the knowledge that I have been given, she would’ve jumped on that band wagon in a heartbeat. She was far more disciplined than I am. If she’d known that Dr. Swank had published his 30 year trial on MS and diet with astounding results around the same time as the release of Copaxone, she’d be here telling me about the new exploits of her now adult son.

That’s why I have a responsibility to share my experience, strength and hope and that includes the dark stuff. So anyone afflicted with not just MS, but other autoimmune conditions, can have a chance to take control of their own health again or even better, prevent themselves from ever developing one of these diseases. This is my personal journey, and like all journey’s, though they may be the same road, each will be its own.

My success is in memory of Joanne.

 

Bonne Sante

 

Picture from Pexels: https://www.pexels.com/photo/adult-background-beach-blue-296282/

Living Proof in Early February in Calgary

Below is the information to see Living Proof in Calgary, where and when:

No automatic alt text available.
MS Hope

Landmark Cinemas Canada is hosting screenings of Matt Embry’s documentary Living Proof February 03-05!

Saturday Feb. 03, 2018 1 p.m.
Sunday Feb. 04, 2018 1 p.m.
Monday Feb. 05, 2018 7 p.m.

Surrey – Landmark Cinemas 12 Guilford
GTA – Landmark Cinemas 24 Whitby
Ottawa – Landmark Cinemas 24 Kanata
Calgary – Landmark Cinemas 16 Country Hills
Edmonton – Landmark Cinemas 9 City Centre

TICKETS
Available soon @ https://www.landmarkcinemas.com/film-info/living-proof

Off to see the Social Worker tomorrow!

I have my appointment with her tomorrow at 9 am. Our discussion will be about my intent to go back to work, the possible fall outs, the logistical nightmare with not one but two disability programs in the US and Canada, the need to assess skills against disability I still have, and fears associated with past disasters as a result of unexpected attacks throwing monkey wrenches reocurring again in my life. From there I will have appointments with Occupational Therapists and the MS Psychologist.

When I am done with this phase of my rehabilitation, then I will contact Champions, which is a career counseling program specifically for the disabled. I have a tricky resume and a past full of black holes. Examples:

  • I have 64 college credits in business and writing with a high GPA, but I can’t get my transcripts due to a government bankruptcy I was forced to declare at that time due to, you guessed it, MS.
  • I sold credit cards for MBNA for three years and was one of that telesales center’s best sales performers and sales coaches. But, MBNA sold out to Bank of America, so I have no reference that I can give an employer.
  • I spearheaded grassroots, non profit events from the ground up over 15 years, all successes, all unpaid. The college degree was to back up my experience with a bachelors in business and a minor in writing. The plan was to be a professional events planner.
  • I have seven years experience as a Mental Health Technician. Two years as an Aid at a State Hospital and trained in Crisis Intervention with five years experience on an Acute Mental Health Unit at a community hospital. But, a long time ago, 1980-1982 and 1989-1994, a. shows my age (55), which can discriminate myself from getting the first interview and back then, you didn’t have to have a degree or certificate for these positions. I was hired for the five year position based on my two years experience at the state hospital.
  • Then there’s the years disabled. How do I deal with that with an interviewer and on my resume. Tough one, of which I am not alone. I am assuming that Champions Career Counseling is familiar with this conundrum.

You see the issues, I have a lot of honed skills, but not much proof on paper, although testing will help and once I am hired, my actions will show over time what I am capable of. But, ….to get there. Well, I guess that’s where my Higher Power comes in. I’ll do the foot work, the rest is not mine to control.

Most important to see is that I am on a vista that has a far ranging future. I do not anticipate a future MS attack, not on this lifestyle. Can I gauge that by my own experience, no, its only been ten months. I can, however, gauge it by the many others I’ve talked with and listened to online and in person, who have followed this lifestyle and kept their autoimmune illnesses at bay and in check for years and for some decades. I know this works. Once upon a time, I couldn’t predict what could happen with this illness, now, I feel confident to say, I can.

Wish me luck as I move out into this phase of my journey to health!

 

Bonne Sante

Powerless? I think not!

I have my neurology appointment tomorrow. I’ve not seen my Neurologist since just before I began the Protocol. My last visit with him was an emergency visit because of an attack I was having and after three visits to the emergency room with excruciating back pain and a bad fall, I realized I was having an attack. My walking had deteriorated significantly and really had been getting progressively worse year after year. I had walked with a cane for four years, but now I needed a walker, even at times in my own home. The Doctor told me to take only half a dose of steroids. He was worried about what it may do to my bones where I have three fusions in my neck. I asked him for muscle relaxers. For me to ask for that, things are bad. I’m not big on taking drugs if I can help it. I chose to not fill the steroids script and took a half dose of muscle relaxers at the prescribed times. On day two of this, I was slurring my speech, sleeping hours during the day and drooling on myself. I said, “F@#k this!”, and started working towards what I knew was the answer all along having been introduced to the Wahls Protocol two years before. I saw the wheel chair and the motorized scooter looming ahead.

Three weeks after that I started this blog to help me stay on track and be accountable. I considered naming the blog “F@#k this!”, but thought that might detract from what it is actually about without an explanation in the title. So, Defeating MS – My Journey became the title, it says it all. As many of you know, I’m off the walker, then the cane. My mobility has improved back to what it was five years ago and gets a little better everyday, I’ve lost 34 lbs and my cognitive damage has improved dramatically as well. So, I’m going to see my Neurologist, who hasn’t seen me since all of this occurred. He’s been a good Doctor for me. I’ve had support. They know what I am doing and he sent the scripts and paperwork I needed to do Wahls electrical stimulation and physical therapy for my leg. He could’ve said no or charged me money for the paperwork. I have no resentment with him. The system, though, is too inundated with medication as the only resort for autoimmune illnesses. Someone debated with me not long ago, who is in the medical field, she argued the tired defenses that you can’t truly test if the Wahls Protocol works because you don’t know if their sticking to it and even if you do tell people, they won’t do what’s good for them. I agreed, that’s true in regards to the second point, but maybe 25% of them would if they at least knew that this exists and that it works. People need to at least know that this is an option and it comes with no ill side effects. And in answer to the first point, Wahls has suggested that they record their progress. Wahls Warriors she calls them. They are filming, writing, and blogging. Living proof they are. No its not a double blind study which costs millions to do. Right now the backing isn’t exactly there, but the testing is happening. Dr. Wahls is a published research MD aside from her Protocol, Autoimmune Wellness AIP are in the midst of research testing as is Dr. Jelinek of Overcoming MS OMS in Australia. Whether the pharmaceutical companies like it or not, it is coming.

Alright, back to my Neurologist. I keep side tracking the original thought. I have no idea what his reaction to any of this will be. I stopped my Copaxone about a month ago, they know that. Will it be indifference? Will it be interest? Might he be excited about my progress in the other, unexpected direction? Will he try to talk me into going back on Copaxone? No clue! I have a had an MRI confirming the attack. It showed two new lesions in my back, the year before, lesions were developing in my mid back. Scariest is the conversation I need to have with him in regards to seeking support and therapy to become ready to try working full time. I want to try this in five months, I understand full well, it may not be possible for me to ever work full time because of fatigue. While fatigue has diminished greatly, it is still around and must be factored in. My hope is that it will continue to get better. Then there’s the fact that I am 55 years old. Glass half full: I have at least ten years I could work, glass half empty: I am 55 and have MS, Wahls or no Wahls, like it or not, it is a major factor. I am confident I could work a little part time job. I have been considering doing this right now to help offset costs of the diet. This diet with supplements is costing me $500 to $600 a month. Ordinarily, $300 is what I spend on groceries and household a month. It’s a heavy amount on a small fixed income with no other source of income.

I am of this belief: Nothing is impossible if it is meant to be and you work hard for it. How do I know its meant to be? Well, the healing for one. I feel like I’ve been in some ways, frozen in time, unable to move forward. I feel free to once again work for future goals like school or work or non profit work. I have hope, when once I didn’t.

I am no longer a powerless victim of this disease.

 

Bonne Sante

A puzzle worth solving

It can be very complex being your own doctor. No longer do I blindly give over my life to the medical system while I take no part in learning how my body works.  Don’t get me wrong, I’ve been my own advocate since 2004 from the first time I fought that statement, “Its stress.” To the final time, this past winter, a MRI, once again, gave proof that it wasn’t just “stress”. Though I’ve said repeatedly how I wished it was just that. Of course, paradoxically, stress is a big contributor to disease. My worse physical attacks have been while under extreme duress. The difference I speak of here, is where my answers are coming from, namely other sciences and unconventional doctors. So, in a way, still from Doctors just not the normal route. These Doctors require, so that I can be most successful, that I know my body and the sciences that govern it of nutrition and environment.

I’ve followed the Wahls Protocol as closely as I can for it is very precise and extremely detailed. There is volumes to learn. I don’t want that to sound discouraging, it required that I put the same amount of energy that I had put into living disabled into a changed mindset of getting well. I just needed a route that could be effective. And this was it. No longer hopeless, I had hope. No longer did I have to sit idly by and be a victim. I could actually do something about this and not wait for the day I would be bedridden. As I follow this, there is always something else to work on. For example, I’m still largely adjusting to living on a Nutritious Ketosis diet. The most recent issue, which I’ve blogged about as it was ongoing, was feelings of depression and overwhelming sleepiness. After a couple weeks of this, I finally found an article which I gave a link to on that particular day on my blog. The answer was that I wasn’t eating enough fat for my body’s energy needs on the Ketosis diet and I wasn’t eating enough protein, the bare minimum was all I was having. Since increasing both, my energy is increasing, my depression has dissipated and the sleepiness has completely lifted. So, that was it. It required me to do research, find what I was missing nutritionally, thanks to Dr. Wahls and my willingness to learn forming a base knowledge of Ketosis from which to start from, having read Wahls book several times, articles on the net, other’s experiences on the Wahls Facebook group, I found my answer.

At present, I am working on figuring out why I am losing so much hair. I have thick hair and woe to the person who lives with me, they gotta deal with that too. I’ve always lost a lot of hair and incredibly, my hair remains thick. But, this, is too much and unusual, and coming right from the roots. My intuition says it is the Ketosis diet, I am lax on a few things as I had mentioned in a previous blog, one of which is bone broth, another seaweed and still another organ meat. I feel the answer probably lies with one of these, or a supplement I need to take, like Q10. I will research what could cause hair loss nutritionally, then go from there. No longer is it a call to the Doctor, or just do nothing at all. I am my own Doctor and I am responsible to find the answers. The good news? The answers are out there! If its there, being the tenacious sort that I am, I’ll find it.

I do crosswords daily. Its one of my cognitive exercises and something I enjoy doing. I was intimidated by crosswords for years, I’d try one every now and then, and unless it was super easy, I’d give up after a minute or two. See, on a harder puzzle, I would suspect the answer, but have no confidence in my choice, then give up. Until I lived with a friend for two years who is an avid crossword enthusiast. You know the type, does the Sunday New York Times puzzle, one of the those. I started doing some of the medium puzzles lying around the house in books that had the answers in the back, and I began to realize that those answers I suspected, were nine out of ten times correct, but weren’t proven yet by the “crossword”. I changed my attitude. I filled in the word with what I felt was probably it even if I couldn’t prove it yet, and I began solving crossword puzzles. I’m still not great, but I do the medium ones with ease now and can do half of some hard ones.

This is like that, trust your intelligence, trust your intuition, do the foot work and you’ll reap the rewards. You just have to want it bad enough.

 

Bonne Sante

 

Picture from Pexels: https://www.pexels.com/photo/frame-less-eyeglasses-on-newspaper-53209/

Cryptic messaging within an ominous blood red color. What are they trying to say?

Hello all, I have spent the last three hours trying to figure out a reason that Dr. Wahls Tedx Iowa city talk, “Minding your Mitochondria” would have this disclaimer on it from Ted:

“This talk, which features health advice based on a personal narrative, has been flagged as potentially outside TED’s curatorial guidelines. Viewer discretion advised.”

This is what I did to find the answer to the reason for the disclaimer:

  1. I read their curatorial guidelines, all of them and could find nothing about her talk that was outside their guidelines. Now keep in mind this is where human error can be wrong, I’m no expert on anything, I could be inaccurately reading that information. Therefore, I always suggest that anyone read and research for themselves.
  2. I thought maybe the Tedxiowacity was the problem, maybe all of their talks are flagged. So, I went to their website, but found that the site was only for that one event, November 11, 2011. No answers here.
  3. I looked into the Ted sites, there are many, I only looked at the main Ted website and the Tedmed website. I really didn’t find anything helpful here except this, I was curious to see the partners for Tedmed, I found three of their partners are large pharmaceutical companies. Does this have anything to do with the disclaimer? I don’t know. But, it does make me trust them less.
  4. I looked up what is the difference between a Ted talk and a Tedx talk. Tedx means that it is was filmed at an independent Tedx event.
  5. Next, I examine the disclaimers: reading the disclaimer that is splashed across the screen in “evil” blood read, it says: “This talk, which was filmed at an independent Tedx event, falls outside Teds curatorial guidelines, see more below.” and then the more below is as stated above: “This talk, which features health advice based on a personal narrative, has been flagged as potentially outside TED’s curatorial guidelines. Viewer discretion advised.”

I like words, actually I love words and I especially love the art of persuasion, in examining these disclaimers, this is what I glean from them.

  • “This talk” denotes that the problem they are identifying is the talk itself, not who organized it.
  •  “…falls outside Teds curatorial guidelines”, as the disclaimer later states, however, they neglect to say how it falls outside Teds curatorial guidelines.
  • “See more below.” I thought, ah, here is where it will tell me how it falls outside the guidelines. But no, rather it says, cryptically,
  • “has been flagged as potentially outside TED’s curatorial guidelines.” Why did I say “cryptically”, well lets look at the definition of the word “potentially”:  
    adverb
    1.

    possibly but not yet actually:

    potentially useful information. from Dictionary.com 
    Still nothing definitive
  • “Viewer discretion advised.” Under this last ominous warning, I followed the link to TED’s curatorial guidelines and read everything as stated above. Nothing is there that I could see.

All this leaves me with these questions, “Are they trying to discredit Dr. Wahls talk?” and “Why would they do that without a definite stated reason?” The next question that comes to my mind is, “Is their an immoral reason for discrediting her talk?” and “What might that reason be?”

Most of us in our busy, busy lives will not or cannot take the time to truly explore information. At a glance, the disclaimer looks bad and if you don’t know anything about Dr. Wahls work, you might not bother watching, the blood red warning, the viewer discretion, the “potentially” outside our curatorial guidelines and finally, the following talk title, “Debunking the Paleo Diet.” Which sounds like it is directed at Dr. Wahls talk, which it isn’t, but you wouldn’t know that unless you watch both talks. Then, when you get into the most recent comments, you have this guy butting everything: LudwigVanYesBut is his name.  “LudwigVanYesBut”, good one.

Oh well, such is life, research everything for yourself, take nothing at face value, check and double check information. I don’t have a definite answer to this, except this, they don’t have a reason. Put up a reasonable reason or take down the disclaimers.

Dr. Wahls Tedx Talk

 

Bonne Sante

 

Picture from Dreamtime: https://www.dreamstime.com/stock-photo-post-truth-letters-word-being-buried-sand-image82597046

Minding your mitochondria – Dr. Terry Wahls Ted talk

This is interesting, of course the talk is interesting, its 17 minutes and 46 seconds, brief, powerful and she’s living proof. This was 2011, since then there’s many more living proof individuals walking, get it walking, around out there because of this “controversial” personal narrative. What I found particularly entertaining about this talk are the comments over the years due to a cautionary disclaimer from Ted X across the screen, which you will need to click the x on the warning to remove to watch the talk with out their banner across it. If I am understanding it correctly, and please do correct me if I am ever wrong, Ted X placed the banner in lieu of removing the talk from YouTube, but there was an uproar of disagreement about them doing that, and so, instead they kept it up and splashed this ridiculous banner on it instead.

See for yourself, I would suggest checking out Tedmed’s partners, three of which are pharmaceutical companies. I found this information on Tedmed’s website under the heading, “Partners.” I then googled each of the partners to see what they were. Some were obvious, such as the AMA (American Medical Association), these were the three that are drug companies: Astellas Pharma in Tokyo under Global Partners and under the heading Innovation Partners are Novartis and Regeneron.

Here is Dr. Terry Wahls talk: Minding Your Mitochondria:

Dr. Terry Wahls Tedx talk

Warning: The Tedmed “warning” banners will reappear forcing to again x them out repeatedly. Of course, I encourage you to read their disclaimer and “more”. And I encourage you to then watch the next video they make a point of following Dr. Wahls talk, “Debunking the Palio Diet.” I also encourage you to read the following comments under Dr. Wahls talk and to join this Facebook group: https://www.facebook.com/groups/wahlsprotocol/

It is a closed group, therefore you will need to request permission to join. If you want to know if this works, listen to the members who are serious about adhering to the suggested diet and lifestyle and watch and hear their triumphs against what was once impossible for them.

What is my motive tonight, I’ll be honest, I was tired, long day, lovely dinner for Canadian Thanksgiving. I was looking to put together an easy blog. I have not watched Dr. Terry Wahls famous Tedx talk, Minding your Mitochondria. The plan was to simply put up the link to the talk. I was going to watch it tomorrow. I had no doubt it was good, as I had seen other talks and have seen Dr. Wahls in person here in Calgary. I’d heard of “the Ted talk”. What I did not expect were the disclaimer banners, and the intent to pull the talk, but then the banners went up when an uproar over them pulling this stopped them. I began researching the situation, reading the comments, reading the Tedmed website and exploring their partners. I have not watched the following talk, “Debunking the Palio Diet.” only because I am too tired and must put this to rest and go to bed, but I promise, I will watch it tomorrow. Finally, if you haven’t done so already, read what has happened to me in six short months on the Wahls Protocol under my blog page: Monthly symptom changes. Okay, bed.

 

Bonne Sante

 

Yay, feeling better!

The cramping is over! And the spasticity is subsiding. I still have bloating, but my sinuses have dried up. You wouldn’t think that cheaper foods could cause such havoc, but after eating better for five months, my body reacted badly to it. It just strengthens my resolve to be strict. I mentioned in the last couple of blogs how I’ve been sick, about five days now, from a culmination of cheap meat, almost no organic vegetables and not taking digestive supplements which really are crucial. That coupled with off and on Ketosis, causing the Ketosis flu which is a need for Potassium, Sodium and Magnesium. I ran into these problems because I am on disability, which means, I don’t have a lot to spend, leaving no room for financial mishap or error. This diet is more than double the cost for groceries, that which includes only some of the supplements recommended. I have to rigidly juggle my expenses, which I have done successfully for five months, but the carpal tunnel surgery, a convention I attended and overspending on supplements and an event caused me to have to cut way back on spending for food and supplements. Suffice it to say, that won’t happen again, if its within my control. I stayed compliant, in that I didn’t have dairy, gluten or sugar (a minuscule amount in sauces at the convention). It was rather, the lack of supplements needed for this diet and cheap meat (that was the worst I think).

Right now, I am finally feeling better and even danced earlier to Jeff Beck. If you know 1970’s Jeff Beck, then you know that that man had a lot of funk in his music, especially the albums Wired and There and Back, both of which featured Jan Hammer. Jan Hammer who was originally with the Mahavishnu Orchestra and after his years with Jeff Beck, later went on to write and perform the award winning music for Miami Vice. Okay, the trivia break is over.

An important component to my staying the course is imagery. I see myself going back to work and succeeding in six months. I see myself regaining my driver’s license in one year. I see myself owning a car in one and half years. Everyday, I am getting more flexible, stronger, more balanced. I do still tip a lot, but have no doubt that too will come with time, patience and hard work. All of this is hard work. It is a commitment. But, one that pays and pays and pays.

I bought another ticket for the final showing of Living proof in Calgary to accompany a friend, to be supportive and for another shot of inspiration in the arm (that never hurts). Everything is still up in the air with e-stim. One of the physical therapy rehabs I had spoke with before is in the same building as where I exercise. I am going to talk to them tomorrow and see if I can get this attended to so that I can begin……finally!

 

Bonne Sante

 

Picture from Pexels: https://www.pexels.com/photo/melting-yellow-tablet-in-the-filled-drinking-glass-34505/

 

 

Advertising and My Blog

It is because of two 100% not commercialized organizations, both of which saved my life for two different reasons and during two different periods in my life that I sit here writing this blog at all. I’ve learned that the truth must remain untainted and that only happens when money for personal gain is kept out of it. When it is time for me to return to work because this lifestyle is leading me in that eventual direction, it will not be this blog or public speaking this message that will be making me a profit. My work on this blog will be in addition to what I do to earn my living. The work I do on the blog and any other way I can carry this message to others will have spiritual merits that far outweigh any money I could mar this with.

Why so strict? Because I’ve many lessons in my life about the power of an unconditional message. Once ads are floating all around it, it becomes mired in other motives and then I can’t take it seriously anymore. I’m not talking about books and media developed by the writer, orator, or producer carrying the message as cheaply as possible so that they aren’t bankrupt carrying the message, I’m all for necessary expenses being covered, such as travel expenses for the speaker by the sponsors of the event or a decent book charge to cover the expense of everything it takes to publish and distribute a book. That’s not what I am talking about at all. I’m talking about side bar ads, pop up ads, google ads, or worse, excepting money from pharmaceutical companies, which would be like Alcoholics Anonymous being funded by Anheuser-Busch, etc. Further would be overcharging for media and services. I can’t take the messenger seriously when I see that. I’ve seen selfless acts of carrying this particular message by highly educated people for nothing. Both Producer Matt Embry’s website MSHope and his father, Geologist Dr. Ashton Embry’s direct-ms.org are both 100% non profit. Dr. Embry’s site is dedicated to using 95% of all funds collected to support CCSVI research. Because we all know we need more medical providers who understand this lifestyle and the science behind it. So, if the Powers that be would have it, the care of which will eventually be covered by the mainstream medical models and then made available to all of us straight from their doctors, how nice would that be. In the mean time, we must be our own doctors, researchers and advocates.

Dr. Wahls research began with Dr. Embry’s. Dr. Embry researched the diet correlation between nutrition and MS and put his son on the diet straight away in 1996 and he realized a connection between vitamin D and MS in 2001 as did Dr. Coimbra across the world in Brazil, around the same time (see research and web sites page).  All of this takes lots of proof. And because these holistic methods do not make certain billion dollar companies money and threaten half their profit and they currently have the power, it is an uphill battle that will not be won easily. But, steadfast, one day at a time, meticulous reporting and research. And pure, unfettered motives. Don’t get me wrong, we are all human, we will all be tempted (“Luke, come to the dark side.”) and we will all screw up or some of us will find the climb too hard and quit.

If I want to be taken seriously, I must document honestly, good and bad about myself, I must tell about my successes and my set backs and there can be no profit motive or this record won’t be worth much. That is how I feel, that is the person I’ve always been. I’m up for the challenge! How about you?!

On a personal recovery note: I am still sick. Its in my intestines. I am feeling better after three decent meals last night and today. I bought some good digestive enzymes and I drank Kombucha tea (1/2 cup) and am taking probiotic capsules to help right the upset. To deal with Ketosis flu symptoms till I get on top of that again, I’m adding Magnesium and extra salt. Trying to eat more fish, spinach and almonds. It is all helping.

One final note: I was lucky to have an Ethics Professor who taught Ethics for 30 years at Harvard, I got him when he chose to teach part time after retiring at my small Maine University. I remember him saying, “Where are the young’s voices in regards to oppression and corruption as they were in the 60’s?” Well, this is a worthy movement and were all sober, well I am!

 

Bonne Sante

 

Picture from Pexels: https://www.pexels.com/photo/light-london-adverts-piccadilly-circus-34639/