All or Nothing? I Pick All.

When I tackle something, I have learned through the years of my life to bring all of myself or nothing. I am an open book. Following the Wahls Protocol and how I am defeating MS is no different. My goals for this blog have been:

  • To help keep myself motivated and accountable
  • To provide a detailed record of one person’s healing
  • To inspire others
  • To give a truthful account, good and bad
  • To share helpful information and shortcuts that I have learned
  • To give a realistic account that does show how hard, yet how doubly rewarding this has been and is
  • To prove that its all worth it

At this time, as I have written in the past few blogs, I am rehabilitating in preparation for the workforce. I will have a job that fully utilizes all that I have to offer. Too be successful, I have had to look at some tough to swallow truths about myself. I have written about these as I deal with them. Is it wise to publicly speak of a crippling past fear of success, of horrible wreckage at the hands of MS, of darker issues that I have worked very hard to successfully overcome, thereby preparing me for a one hundred percent commitment to the Wahls Protocol?

Fear….what if a future employer reads about these issues and discriminates and I lose the opportunity for this job or that? Here’s my answer to that…..I bring all of myself or nothing. That includes any future job on my horizon. My learned skills, my experiences, and my wisdom comes with me. I once lived in a self constructed prison, terrified that the world would know where I’ve been and what I’ve done and that secretly, deep down inside, I knew you knew that I was worthless. It has taken me a long time to overcome that. Today, I have so much to give, so much I want to learn, and so much to share. Because of the Wahls Protocol, my body is finally catching up to my ambition and drive to help others. My mind is out of the fog, awake and hungry to learn more.

I had a friend in the early 90’s who had Progressive MS. She was diagnosed when she was 18. She managed to complete her degree in education, but was never able to realize her potential in her chosen career. By 26, just as I met her, she lost her right to drive, her husband left her for someone else and she then had to let go of her position as the primary caregiver for their three year old son. She was athletic, she went to the gym five days a week. A tiny, muscular thing. She strained as she forced her spastic legs to walk, her hands shook uncontrollably and the day she messed herself, but then calmly gave us direction to help her, all of us embarrassed for her, whilst she stayed calmer then us all. I think often of her courage and dignity in the face of all that ugliness.

That year a new drug, the first ever, was introduced. Copaxone. I watched her face light up with a renewed hope, only to see it fall just a few days later when she was told that the drug could do nothing for her as she was Progressive. Well Joanne, I just want to say to you, I have relapsing remitting MS and I have been on Copaxone for ten years. I started the drug when I had 20 lesions and now I have double that. I too lost my ability to drive, lost my ability to work, had incontinent bowels and had to give up primary care of my children. So, my dear friend, you missed nothing. She died a few years later, bedridden. When I was diagnosed with MS in 2004, I immediately thought of Joanne. Terrified, having watched what it did to her. If she had been given the knowledge that I have been given, she would’ve jumped on that band wagon in a heartbeat. She was far more disciplined than I am. If she’d known that Dr. Swank had published his 30 year trial on MS and diet with astounding results around the same time as the release of Copaxone, she’d be here telling me about the new exploits of her now adult son.

That’s why I have a responsibility to share my experience, strength and hope and that includes the dark stuff. So anyone afflicted with not just MS, but other autoimmune conditions, can have a chance to take control of their own health again or even better, prevent themselves from ever developing one of these diseases. This is my personal journey, and like all journey’s, though they may be the same road, each will be its own.

My success is in memory of Joanne.

 

Bonne Sante

 

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Focus, patience and calm, no less is required.

I read once that the highest percentages of car accidents happen within one mile of home. That’s because we switch to auto pilot and become less observant and alert, over confident and driving on memory. Whereas, less familiar routes, we need to pay constant attention. Also, anticipating home, we might speed up, anxious to get there. I’m a jewelry artist, working mostly in bead embroidery. My pieces can sometimes take months to finish. Within hours of finishing the piece, I speed up and make near fatal flaws, because I can see the end in sight, I am excited to do the finishing touches and complete the piece that I have been meticulous with up to that point. Same theory. I’m going through that right now. I can see the finish line for my foray into the work world and greater independence, but I’m not quite there yet. Here is where I must be particularly careful, lest I jump the gun and undo half of what I’ve achieved so far.

I take something called Access Calgary, which is a door to door service for the disabled using handibuses, vans and checker cabs. I’ve utilized the service for three years now. When I started the Wahls Protocol nine months ago, the drivers knew right away I was the one they were picking up, I either had a walker and always my cane. I just didn’t look well. Now, especially at the Southland Leisure Centre where I work out, they don’t make a b-line for me anymore and twice this week, they went back in their vehicles and phoned Access that they could not find the rider. When I called Access and was directed to the correct vehicle, in both situations, the drivers said, “I saw you, but didn’t think….”. Today too, again. Obviously, I’m looking healthy and compared to most of the people were picking up, I am. And I am grateful. But, as strong as I look, I’m not ready to give Access up yet. Where I work out would take a bus, a train and a bus to get to. An hour of transit one way, carrying a gym bag. The same gym bag will be filled with wet clothes on the way home and a fatigued leg from working out. I take regular transit for local trips and reserve Access for complicated trips like the above. I still suffer from fatigue. I walk strong, but I still have an expiration date and will still fatigue. Eventually, I think I will most definitely be able to let go of Access. But right now, I need them to help me continue to rehabilitate.

I guess, I’m experiencing an in between point. I am rehabilitating to the point of feeling well enough to work and stand on my own two feet, but not quite there yet. I have three more months of intensive rehabilitation to go before I am ready to take the first really big step out. I have an appointment with the MS psychiatrist and the MS social worker at month’s end to discuss psychologically getting ready for the possibility of working full time. Now, I say possibility because I have not one but two neurological conditions to consider. I have a fused neck, a result of a stenosis and compression. The last thing I want to do is aggravate that. I’ve had two surgeries there, don’t want a third one, because then were talking c/1 and c/2, into the base of the skull. And I’ve read nothing but horror stories about that. This is one aspect I will carefully discuss with my doctors. It may be when its all said and done, that part time is the best I can do. I’m shooting for full time, while reservedly, remaining realistic.

I guess time will tell the future story,

 

Bonne Sante

 

What to do when feeling edgy

That is the title, not because I am an expert on the subject, more because that is the mood that has been plaguing me as of late and one way to change the tract of negative thinking is to focus attention on the opposite of it. I don’t always need to know why I feel this way and thankfully, these days, it isn’t often that I suffer from this and thankfully when I do have days or times like these, I won’t tolerate it by entertaining a mood like that for very long. Its time has come. I will say this, a feeling of powerlessness will push me in this direction. If the situation is truly a deal that I am powerless over, then I won’t have peace till I accept that fact. How can I achieve this then? By writing about my feelings, talking about it with a trusted and wise friend, acknowledging it, changing what I can and accepting what I can’t.

To backtrack a moment to not “entertaining a mood”. What do I mean by that. Anything will grow when attention is given it that feeds it. Like oxygen on a flame or water and sun for a plant. It can be good, it can be bad. What I magnify becomes my result. The choice I have is what I choose to magnify my attention on. Suffice it to say I am in a bad mood. Why? Because I have focused my attention on situations that I clearly have no power over and have forgotten what is good. I let myself get depressed over them and indulged in a a narrow and negative point of view. All of which culminated in hissy fits this morning and then feeling bad about that (lot of self centeredness going on there). To get over this mood and get out of my self centered obsession, I need to do the opposite of what was listed above.

I’m powerless……..I ask for a Higher Power’s strength to do what I need to do to get me out of this funk. Means I need to accept what I have no control over, people, places and things and change my attitude to a constructive one, not destructive.

I’m depressed…….I take self care action. Like extra grooming which is an act of self love, extra time cleaning my living space where I dwell, another act of self love. Forcing myself to show up, in my situation its been within the four walls of my house when alone that I succumb. Therefore, show up at home, do things that interest me and if I’m not interested, do it anyway, get things done, don’t sleep and zone out in front of a TV.

I’m indulging negativity…….I will indulge the positive instead, starting with a gratitude list. I find when I take the time to actively sit down and write out a well thought out gratitude list, it doesn’t take long for me to see that, truly, I’ve got it pretty good.

Self centered thought process…….First off, it has taken a long time for me to even understand what self centered thinking is and how to recognize it, for others, it comes easier, for me, its work to stay out of it. Thinking of others, while forgiving myself for my shortcomings (hard for me). Thinking of others and practicing art are ways to get myself out of my head.

There, I feel better already!

 

Bonne Sante

 

 

Enjoy what is

Decreasing stress is one of the components of the Dr. Wahls Protocol. Stress is known to be a catalyst for illness. My own experience proves that. I was under a great deal of duress building up to becoming sick. Life happens, sometimes it isn’t pleasant. I’m stating the obvious, but its important to look at the truth of that. I have learned over the years due to a different illness I have that relies on the practice of gratitude to stay in remission, how to live in the moment, to look at my part in relationships and mistakes, to do spot check inventories, to make gratitude lists and to enjoy what is. Like anything these habits require a commitment and daily practice. I have had years of successfully applying these practices to my life and I’ve had times when I let them go and let old negative habits creep back in to the detriment of my serenity.  It was during those times that I got sick and running scared, made bad decisions that made the situation ten times worse then it had to be.

How to practice serenity is to be grateful for everything. To remind myself to live in the moment. I like these statements, “God will only give you what you can handle in one day.” and “I have all the money I need provided I die at 12 midnight tonight.” That doesn’t mean that I don’t plan for this or that. It means, I make the appointment, research the information, jot down the idea, then let it go, putting it out of my mind till its time to deal with it. This takes practice and is sometimes easier said then done. However, like anything, practice makes it easier to do, then the rewards flood in from the practice.

Sometimes to get down to a free flowing serene state, I must look at unpleasant truths about myself, especially if the same set of calamities or repeated mistakes happen over and over again. That’s usually a sure fire sign that the fault is mine. Somewhere, there are deep rooted issues that must be unearthed, amends made, myself and others to be forgiven and then, if the work is earnest and sincere then peace for this situation or relationship happens. Other people are usually necessary to help with this, such as support groups, advisers, counseling, religious practices for some people, etc. Food for thought, the smartest and most powerful people on Earth have advisers, the more responsibility they have the more advisers they have. It is, paradoxically, not a sign of weakness, but of strength to seek advice and assistance.

Meditation is the practice of being in the moment. To be aware of all five senses, to quiet the mind, concentrate on breathing, build a deeper communion with a Higher Power if one so chooses, or to feel a deeper connection with the Earth with sounds of nature and thoughts of ancient trees and pathways thru the woods or how the Earth feels on your hands when you plant something. We can do quick, in the moment meditations with everyday mundane activities, like concentrating on the warm sensation of sudsy water as I clean the plate, listening for the sound of clacking silverware when I drag the bottom of the sink for silverware to clean. Or we can do long prepared meditations. Set the scene, a favorite spot in our home that we create the space for. Burn incense maybe, light candles, play serene music or sounds (I like the ocean) or listen to a guided meditation. Exercise and jewelry making are both deep sources of meditation for me. I am completely focused when I create, colors, sewing, the feel of beads in my hands, or exercise, I’m off in my own world. When exercising, I am completely riveted on the teacher, the movement I’m doing, the feel of the water, the weights in my hands, the flexing of the targeted muscles, my breathing. When I do these things, I am not thinking about the bills I need to pay in two weeks, or the appointments I have tomorrow or even in two hours, I am completely in the moment. This is one of the reasons I love doing these two activities. Anxiety, fear of the unknown, causes the body to do certain things, increases heart rate, gasping for breath, racing thoughts of fears and over dwelling on negatives. Meditation is the practice of clearing the mind, deep thoughtful breathing, bringing one’s thinking back to the present moment and the realization that one is safe in that moment. Many fears are of bogeymen that are not happening right now and in most cases may never happen. And if there is a difficult loss occurring, job, family, health, then the practice of these above can make them easier to handle, more manageable by making it possible to take the situation(s) piece meal.

To enjoy what is are all these practices, that is the goal for me. That and humor. A sense of humor can cut stress in half and help keep a heart light. There is always two ways to look at any situation. Most of the time there is something good to consider even when it feels unfair. Here’s a silly joke:

Four men from Boston meet every Sunday to play cards. Clancy, Taylor, John and Ian have known each other for decades. John is the upbeat positive chap in the group. No matter what anyone says he always answers, “It could be worse.” This always rubs Clancy the wrong way. One Sunday, only Clancy, John and Ian show up. Ian, visibly upset, breaks the news to Clancy and John that Taylor is in jail after coming home Saturday night and finding his wife in bed with another man, he shot and killed them both. To which, John says, “It could be worse.” Clancy yells back, “That’s the last straw! You drive me nuts, how could it be worse John, two people are dead and our good friend is in jail, how could it be worse, you tell me that?!” John replied, “It could be worse because he could’ve come home on Friday when I was there.”

It could be worse.

 

Bonne Sante

Waking up to the possibilities

I feel weighted down with the financial limitations I have due to the extra money that it costs to keep this way of life going on my limited income. I’m looking at my calendar, I’m counting days to the next pay (13 days to go), I’m looking over the veggies I have and I know that I don’t have the components necessary for each day, but I’m not starving either. I just won’t have the right balance of foods for a short time. I have $18.00 to split between me and my cat. She needs her Fancy Feast and I need greens. I’ll spend the money on Fancy Feast and greens. I’ll take it a day at a time, which is all any of us really have anyway. I had a friend who said once as he watched a hearse go by followed by a funeral procession, “I wonder what that guy was worrying about last week?” I think of that when I start worrying about too many days at once.

My father died from Emphysema at age 61. He said, “Don’t do what I did, I worked hard all my life waiting for the day I could retire and really live.”  He worked three jobs in his 20’s, two full time jobs till he was forced to stop early at age 45 due to his illness. He spent the next 15 years on oxygen, progressively getting worse. He told me this two years before he died. One thing I did do that he just couldn’t, was quit smoking. Addictions are the primary killers in my family. Smoking, drinking, and obesity. My mother and her sister both died from type II diabetes in their early 60’s due to their weight and eating habits. My maternal grandfather died in a drunk tank in the 50’s, most of my generation on my mother’s side have had problems with drinking. Oddly, not my only brother, it jumped over him like a tornado takes down a street of houses, but skips over one. My paternal grandfather died from Emphysema and my father followed in his footsteps. All of them died around the same age, between 60 to 64.

I had it in my head that if I could deal with all the addictions, having smoked since the age of 11 and I am an alcoholic. I stopped drinking in 1991 and quit smoking in 1996. I kept my weight down with a combination of exercise and weight watchers. I never saw it coming when I was blindsided at age 42 with not one, but two major neurological conditions. What happened to all my plans. My plan had to do with the fact that my maternal grandmother was one of 16 and they all lived to the ages of 96 to 104 (no addictions in that line), that was going to be me. We never know what tomorrow could bring. I can prove that by looking at yesterday. Raised in Massachusetts, did I dream I’d be living in the places I’ve lived. Here I am in Calgary away from the swarthy Irish, Italian working class heritage I miss sometimes. Don’t get me wrong here, I love Calgary, great people here. No, did not plan this.

The best way to deal with my life, if I want peace, has got to be one day at a time. I can lay plans, I can have goals, but then, I have to get back into the day I am in or it all gets stressful fast. The actual possibilities available to me are upon waking each morning to the new day ahead of me, if only I don’t squander it unnecessarily on that which I have no control over, tomorrow and yesterday. Most of the time these days, I am fairly successful in doing that and most often I am a light hearted soul. But, there are those days.

The financial fear has to go. Here’s the truth:

  • I have a roof over my head and my rent is paid
  • I have decent clothes on my back
  • I have two children who are healthy
  • I am sober and smoke free
  • I just lost 35 lbs and I am a full two sizes smaller then I was
  • I no longer need walking aids as yet another person asked me just yesterday what happened to your walking (referring to how well I walk now), when you got here you were in rough shape.
  • I have hope for the future
  • I have the food I need today
  • I have medical support helping me get back on my feet
  • I have the Dr Wahls Protocol and the willingness to keep at it
  • I have two neurological conditions that do not define who I am nor do they decide what my future will be, anymore

This is shaping up to be a hell of a day!

 

Bonne Sante

 

 

 

 

Catch 22

I applied for a part time customer service position for a non profit recreational center whose mission is to enable the disabled to live in adapted housing, empower gainful employment and advocate a social, viable and visible life. I was so moved by this that I thought it a good idea to mention the fact that I am disabled in my cover letter. Where as I am not worried about explaining my quickly improving situation in a face to face interview, I regret stating it, however brief in my cover letter.  If I don’t hear from them by the 19th, then I know I’ve been passed up. Ordinarily, I would never put that in a cover letter, I would reserve it for the interview. Who knows, I might be surprised and get an invite for an interview despite that.

Next month, I’ve decided to go back to Wahls Paleo (level II), Wahls Paleo Plus (level III) is proving to be too inflexible for my financial situation right now. It is true, that I eat less and only two meals a day, which should make for a lesser monthly grocery bill, yet I have found the bill to be the same. What is happening is that I am in and out of Ketosis due to lack of this and lack of that. Which can’t happen on this level. I’ve decided that I need the flexibility and the increase in food choices of the second level, for now. All the levels are Wahls compliant. I am compliant no matter which level I choose to do and I have experienced dramatic healing on all levels, besides, I miss fruit. I can’t stand smoothies without sweet fruit in them. There, decision made.

Why do I have to wait till next month, because I have $20 for the rest of the month and have to wait till then to replenish groceries. This is a very honest blog of my experience on the Wahls Protocol, good and bad. It is expensive. It can be made less expensive by buying in bulk, buying whole slaughtered pastured animals and using a large freezer, putting a garden into your back yard, investing in expensive equipment to make your own Kombucca teas and a Vitamix to make your own nut butters and other foods. The things that make it cheaper in the long run, cost a lot of money up front. My Doctor strongly suggested that I wait till all my rehabilitation is finished before I seek employment, because as he stated and I know to be true as well is that I will need all my energy to complete the numerous appointments, homework and the opportunity to gain that much more strength before I strike out. Hense, a catch 22.

Catch 22

A requirement that cannot be met until a prerequisite requirement is met, however, the prerequisite cannot be obtained until the original requirement is met.

 – Urban Dictionary

My greatest asset is my tenacity, which will see me through this. In the mean time, my walking, stamina, moving, thinking and talking are getting better everyday.

Marching forth!

 

Bonne Sante

 

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The next phase is upon me!

Dr. Wahls celebrated 10 years on her Protocol yesterday. She had a wonderful talk with updates of where she and her team are with everything including research. See her live video here: Terry Wahls 10th Anniversary video talk

Things ramped up today. I began physio today, which was great. I had the consultation several weeks ago. I was given three exercises then to start for my drop foot leg and its hip flexor paralysis. One of the exercises I couldn’t do at all. That was the first one the physical therapist had me show him. Physio, “Is that your drop foot leg?” Me, “Yes.” Physio, “So you’ve been doing the exercise, that’s better than I expected.” I think, two things, I am faithful with my exercise, I have worked the exercises into my regular exercise routine. I am directed to do these exercises everyday, but my routine is just four days a week in the gym, that’s when I do them, four days a week. The reason I am further along then the what the exercise would do is because of the Wahls Protocol diet. Everyday, I am stronger in some way and exercise and physio are only two factions of it. Two important parts, but it is the whole shebang that makes the bigger difference. For example, I have never stopped exercising, exercising is a big part of my life, it did not by its self stop the progression of MS. However, as apart of the eating lifestyle of whole foods, targeted supplements, less toxic environment, physio, e-stim, and exercise, all combined is arresting this dreaded disease.

So how are things ramping up? Well physio for one. I will go every two weeks for a total of nine visits. Today I had a call to make the appointment with the MS psychiatrist, which was set in December. When I got home, I had a letter from the Optimist program who will be helping me with rehab for a possible return to full time work. And yesterday, I applied for a part time job. They may never call me, but I applied. It seemed like a job that was a perfect fit. It was customer service which is varied responsibilities for a company that is a non profit whose mission is to help the disabled live life to their fullest potential. The customer service is for their recreation center which has a large swimming area featuring a salt water pool. And, they are fifteen minutes away by bus.

Why am I considering part time work when I have a big job ahead of me to further rehabilitate before trying for a full time job? Because I just don’t make enough money to support the Wahls protocol and live. The first four months, I have a credit line that I borrowed $200 from every month. That’s maxed three months now. I have not made any payments on the line since I began the Protocol and I am $200 short every month. Although, on the credit line, I am not required to make payments as long as I pay its interest, which I do, but that is not good for your credit rating. I am paying my bills and I am sticking to the bare minimum for the diet, some months I get supplements and some months I don’t. Its becoming stressful. In my world there are no mistakes, I feel that I could handle a part time job. I will need a lot of energy to get through all the rehabilitation and homework that comes with it along with keeping up the Wahls Protocol. But, I am talking part time, not full time. If it is meant to be, it will fall into place and it will be okay, and if it isn’t meant to be and I have to wait, then I have to wait and I’ll get by and it’ll still be okay. That’s my take on this. In the mean time, I can take this a day a time and remember that today, I have all the money I need provided I die at 12 midnight tonight.

 

Bonne Sante

 

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Powerless? I think not!

I have my neurology appointment tomorrow. I’ve not seen my Neurologist since just before I began the Protocol. My last visit with him was an emergency visit because of an attack I was having and after three visits to the emergency room with excruciating back pain and a bad fall, I realized I was having an attack. My walking had deteriorated significantly and really had been getting progressively worse year after year. I had walked with a cane for four years, but now I needed a walker, even at times in my own home. The Doctor told me to take only half a dose of steroids. He was worried about what it may do to my bones where I have three fusions in my neck. I asked him for muscle relaxers. For me to ask for that, things are bad. I’m not big on taking drugs if I can help it. I chose to not fill the steroids script and took a half dose of muscle relaxers at the prescribed times. On day two of this, I was slurring my speech, sleeping hours during the day and drooling on myself. I said, “F@#k this!”, and started working towards what I knew was the answer all along having been introduced to the Wahls Protocol two years before. I saw the wheel chair and the motorized scooter looming ahead.

Three weeks after that I started this blog to help me stay on track and be accountable. I considered naming the blog “F@#k this!”, but thought that might detract from what it is actually about without an explanation in the title. So, Defeating MS – My Journey became the title, it says it all. As many of you know, I’m off the walker, then the cane. My mobility has improved back to what it was five years ago and gets a little better everyday, I’ve lost 34 lbs and my cognitive damage has improved dramatically as well. So, I’m going to see my Neurologist, who hasn’t seen me since all of this occurred. He’s been a good Doctor for me. I’ve had support. They know what I am doing and he sent the scripts and paperwork I needed to do Wahls electrical stimulation and physical therapy for my leg. He could’ve said no or charged me money for the paperwork. I have no resentment with him. The system, though, is too inundated with medication as the only resort for autoimmune illnesses. Someone debated with me not long ago, who is in the medical field, she argued the tired defenses that you can’t truly test if the Wahls Protocol works because you don’t know if their sticking to it and even if you do tell people, they won’t do what’s good for them. I agreed, that’s true in regards to the second point, but maybe 25% of them would if they at least knew that this exists and that it works. People need to at least know that this is an option and it comes with no ill side effects. And in answer to the first point, Wahls has suggested that they record their progress. Wahls Warriors she calls them. They are filming, writing, and blogging. Living proof they are. No its not a double blind study which costs millions to do. Right now the backing isn’t exactly there, but the testing is happening. Dr. Wahls is a published research MD aside from her Protocol, Autoimmune Wellness AIP are in the midst of research testing as is Dr. Jelinek of Overcoming MS OMS in Australia. Whether the pharmaceutical companies like it or not, it is coming.

Alright, back to my Neurologist. I keep side tracking the original thought. I have no idea what his reaction to any of this will be. I stopped my Copaxone about a month ago, they know that. Will it be indifference? Will it be interest? Might he be excited about my progress in the other, unexpected direction? Will he try to talk me into going back on Copaxone? No clue! I have a had an MRI confirming the attack. It showed two new lesions in my back, the year before, lesions were developing in my mid back. Scariest is the conversation I need to have with him in regards to seeking support and therapy to become ready to try working full time. I want to try this in five months, I understand full well, it may not be possible for me to ever work full time because of fatigue. While fatigue has diminished greatly, it is still around and must be factored in. My hope is that it will continue to get better. Then there’s the fact that I am 55 years old. Glass half full: I have at least ten years I could work, glass half empty: I am 55 and have MS, Wahls or no Wahls, like it or not, it is a major factor. I am confident I could work a little part time job. I have been considering doing this right now to help offset costs of the diet. This diet with supplements is costing me $500 to $600 a month. Ordinarily, $300 is what I spend on groceries and household a month. It’s a heavy amount on a small fixed income with no other source of income.

I am of this belief: Nothing is impossible if it is meant to be and you work hard for it. How do I know its meant to be? Well, the healing for one. I feel like I’ve been in some ways, frozen in time, unable to move forward. I feel free to once again work for future goals like school or work or non profit work. I have hope, when once I didn’t.

I am no longer a powerless victim of this disease.

 

Bonne Sante

Let the chips fall where they may

Good news for me today! I got word that my physical therapy for my left leg, gait and balance is approved. I’ll call the physio place that I am approved for tomorrow and set up the next appointment. I’m approved for roughly nine or ten visits, which is what was recommended. I took the opportunity to ask my disability worker if I could meet with her in two months for a face to face visit to discuss my plan to go back to work in five months. This Friday, I see my Neurologist, who I saw not long before I started the Wahls Protocol. He does know that I have been following this and they know that I’ve discontinued my MS drug. I want to ask for help with counseling and preparation to work. I need all the help I can get with this.

Yesterday, I had a pretty good test of my stamina. This is how I fared. I went to the gym per usual with the usual schedule of one hour swimming, shower, rest thirty minutes, then thirty minutes circuit training with weights. What was unusual was a visit with friends who picked me up at the Leisure Centre. We had lunch and decided to go to a “Maker’s Fair”. Which was a very interesting fair of art and science. It did require a lot of walking on top of working out that morning. I did weaken dramatically after an hour and a half, where I was teetering a lot and was visibly struggling. After two hours, I was light headed and nauseous. That was my cue to rest, whether I liked it or not. I sat in the foyer on the stairs and cooled off, the other problem was the hot spots at the last location I was moving through. I let my friends know where I was. One came back and helped me up a flight of stairs to a lounge to have coffee. We sat in a nice spot, they had picnic tables overlooking the event. We sat, sipped coffee and chatted while we watched the Fair from above. It was nice of her to stop to keep me company for an entire hour. I did revive my leg enough to be able to continue on. I spent another hour walking the event and stood in one place for an extra half hour at a very interesting booth we went for a second time to see. All told, I was at the event from approximately 12:30 till its end and 15 minutes past that, 5:15. Leaving the event, I needed my friends, to give me an arm on each side to climb a slightly elevated hill. I was tired. Got home, ate dinner, wrote my blog and cancelled my exercise for this morning. Where I am stronger is my stamina before fatigue happens, is noticeably stronger by all who know me. But, fatigue does still happen.

The assistance I needed for the uphill climbs on stairs and slanted hill were because of fatigue. This is exactly what I need to take into account when considering employment possibilities. Hence, no walking the whole shift with a job that can afford me to sit when my body demands it: This will be criteria number one. The second issue, I left home at 7 am to swim at 8 am. I got home at 6:30 pm and knew that I would need to cancel exercise in the morning. This will not be an option for back to back days at work. Will need to closely regard this. Does this mean that working full time is out of the question. No! Just means that my combination of duties will need to be what I’ve known, a combination of varied action that allows me to walk, and sit intermittently. A friend suggested a stay at home job. That could work too. I could do that as well. I’m good with computers, writing, and telephone work. I’m also self disciplined and could organize my time at home and be efficient. As I traverse the waters of what I can I do, I will ultimately leave the final outcome of what my job will end up being up to my Higher Power. My job is to do everything I can to prepare myself and then let the chips fall where they may.

I wonder where they will fall…………….hmmmmmm.

 

Bonne Sante

 

Picture from Dreamstime: https://www.dreamstime.com/royalty-free-stock-image-poker-chips-air-winning-falling-hand-pocket-aces-full-house-image35270266

Another Big Day

Sleepiness is away. This is what I ate today:

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Midday meal of Baked chicken thigh with coconut oil, Cajun sweet potato fries baked with coconut oil and a cabbage, onion, and carrot Cole slaw in a balsamic/olive oil vinegarette
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Dinner, fried cod with coconut oil (two pieces instead of none for the second meal), sauteed broccoli with garlic and onion in coconut oil, last of spinach with pepper, cabbage, radishes, almonds, onions, and carrots in a vinaigrette. 

Look at these meals, poor me, I gotta eat this! I expect this food in a good restaurant. These are the types of dishes I am eating most days, factor in smoothies and bigger salads, with chia seed pudding from time to time for a treat. Chia seed recipe:

  • 3 tbsp Chia seeds
  • 3/4 cup fresh fruit (I like strawberries or blue berries or both)
  • 1 cup full fat coconut milk
  • 1 tbsp almond butter
  • dash of salt and a 1/2 tbsp cinnamon

Mix together and let sit for 1 hour or overnight. Awesome stuff!

Another big day, spoke with my Neurologist’s nurse today. She’s so good at getting back to us. We spoke at length. She filled out the form sent to my Doctor for physio, yay! Have to wait a week for my Doctor to be back from vacation to sign it. Then that should be good to go. I reiterated that I will not be renewing my Copaxone prescription. She warned me that I might not be able to get back on it if I stop. She’s right too, in Alberta, they require you to have two MS attacks within a two year period to be approved for a MS drug. Even if you’ve had a dozen attacks and dozens of lesions, and have taken the drug before. Its an odd criteria, I am aware of it, I had to wait for a second attack to hit to get back on Copaxone after having been on it for three years. Copaxone has proven to me that it does nothing, while the Wahls Protocol has proven to me that it does far more than Copaxone can barely claim to do. So, I’m done with it. My mind is made up. And the third biggie in the conversation, was going to back to work in five months. I asked to have support. I want to see my Doctor, not a student of his so that I could speak to him of the fact that I am terrified to go back to work. Fear of the rug being pulled out from under my feet again. I have safety nets in place now that I stand to lose, namely subsidized housing and disability. The last time, I ended up homeless, bankrupt and lost primary care of my daughter. Yes, its a frightening prospect. I need all the help I can get! And so, the next five months my job will be to get ready to work, physically, psychologically and logistically. Spiritual disclaimer: “If it by Thy will.” I am on this planet to live it to the best of my ability.

Important to remember, that as I move in this direction, it does not mean that it will end the way it seems that it will, with a job and that I will be okay working thirty-five to forty hours per week. I may find that the best I can do is twenty hours a week or less. I won’t truly know till I settle in. In the mean time, I will do everything I can to be prepared. Hopefully, after a few months of rehabilitation and counseling, I’ll then pretend to work, by scheduling full days of work. I’ll set pretend hours and begin to build my schedule and life around the loss of those hours. That will help give me a clue whether its possible. And after a month of that, then I will begin applying. Of course, by then, I will know the best occupations to strive for, I will know what I can do and can’t. I already have a good idea. And, given the remarkable progression of wellness I’ve had in seven short months, I believe that I should be in better shape then as well.

Friggin’ Scary! That’s how we would’ve said it in Worcester, Massachusetts where I was born and raised : )

 

Bonne Sante